Living with Dementia

This book addresses current issues in the neuroscience and ethics of dementia care, including philosophical as well as ethical legal, and social issues (ELSIs), issues in clinical, institutional, and private care-giving, and international perspectives on dementia and care innovations. As such, it is a must-read for anyone interested in a well-researched, thought-provoking overview of current issues in dementia diagnosis, care, and social and legal policy. All contributions reflect the latest neuroscientific research on dementia, either broadly construed or in terms of the etiologies and symptoms of particular forms of dementia. Given its interdisciplinary and international scope, its depth of research, and its qualitative emphasis, the book represents a valuable addition to the available literature on neuroethics, gerontology, and neuroscientific memory research.

Covers issues related to dementia diagnosis, treatment, support and policy Discusses qualitative, first- and second-person data used to develop, test or refine theoretical proposals Includes cutting-edge international research that highlights global innovations in philosophical and applied work

Autorentext

Veljko Dubljevic Ph.D.,D.Phil., is an Assistant Professor of Philosophy and Science, Technology and Society (STS) at North Carolina State University. Before arriving in Raleigh, he spent three years as a postdoctoral fellow at the Neuroethics Research Unit at IRCM and McGill University in Montreal, Canada. He studied philosophy (University of Novi Sad) and economics (Educons University), and obtained a PhD in political science (University of Belgrade). After that he joined the Research Training Group "Bioethics" at University of Tuebingen, and after studying philosophy, bioethics, and neuroscience, he obtained a doctorate in philosophy (University of Stuttgart). Veljko's research focuses on ethics of neuroscience and technology, and neuroscience of ethics. He has over 50 publications in moral, legal and political philosophy and in neuroethics. He co-edited a volume at Oxford University Press (together with Fabrice Jotterand): Cognitive Enhancement: Ethical and Policy Implications in International Perspectives, and published a monograph Neuroethics, Justice and Autonomy: Public Reason in the Cognitive Enhancement Debate, in Springer Book Series "The International Library of Ethics, Law and Technology".

Dr. Frances Bottenberg holds an academic position as Lecturer in the Department of Philosophy at the University of North Carolina Greensboro. She received her M.A. in Philosophy from Temple University and her Ph.D. in Philosophy from Stony Brook University. Bottenberg's scholarly work aims to offer counter-perspectives on the nature and value of "unusual" minds and lived experience. Her publications include "Emotion as the Animation of Value", "Searching for Alterity: What Can We Learn from Interviewing Humanoid Robots?" and "Judging Inappropriateness in Actions Expressing Emotion." In-progress work includes a survey chapter on ethical and social issues faced in dementia care for a clinical manual, as well as a monograph on the phenomenology of dementia. Bottenberg is also a founding member of Reimagining Dementia: A Creative Coalition for Justice, an international initiative aimed at improving the quality of life for people living with dementia.

Inhalt
Section 1: Conceptual issues 1. The Ethics of Dementia Risk Reduction.-2. Refined Discourse Ethics and the Social Inclusion of People with Dementia.-3. Do You Remember Who You Are? The Pillars of Identity in Dementia.-4. Respect for Autonomy in the Face of Dementia: The Case of Deception.-Section 2: Empirical and Clinical Implications 5. Directing the End of Life in Dementia.-6. Diagnosis Threat Related to Disclosure of Alzheimer Disease Biomarkers and a Discussion of the Ethics in Clinical and Research Settings.-7. Public Representation of Social and Ethical Issues in Frontotemporal Dementia.-8. Assessing Consent to Intimate Sexual Relations Among Nursing Home Residents With Dementia.-Section 3: International perspectives 9. Defining dementia best care standards when cultural safety is at stake: The case of Indigenous Canadians with dementia.-10. Towards an Ethics of Anticipation, between Hope and Responsibility: French Perspectives in the Case of Alzheimer's Disease.-11. Legal Status and Dignity of Persons Living with Dementia in Serbia.-12. Ethical implications of genomic research on dementia in sub-Saharan Africa: addressing the risk of stigma.-13. Patient Advocacy in Dementia: The Culture and Ethics of Policy-Making and Representation.-14. Legal capacity in the civil legal lives of persons with dementia in Taiwan: Implications of the Convention on the Rights of Persons with Disabilities <p