What are the limits of sympathy in dealing with another person's troubles? Where do we draw the line between caring for a loved one, and being swallowed up emotionally by the obligation to do so? In this vivid and thoughtful study, David Karp chronicles the experiences of the friends and family members of the mentally ill, and how they draw "boundaries of sympathy" to avoid being engulfed by the day-to-day suffering of a loved one. Working from sixty extensive interviews, the author reveals striking similarities in the experiences of caregivers: the feelings of shame, fear, guilt and powerlessness in the face of a socially stigmatized illness; the frustration of navigating the complex network of bureaucracies that govern the mental health system; and most of all, the difficulty negotiating an 'appropriate' level of involvement with the mentally ill loved one while maintaining enough distance for personal health.
An insightful, deeply caring look at mental illness and at the larger picture of contemporary values, The Burden of Sympathy is required reading for caregivers of all kinds, and for anyone seeking broader understanding of human responsibility in the postmodern world.

"David Karp is a great ethnographer of disrupted lives, offering profound truths in clear prose, combining empathy with analysis. Burden of Sympathy gives eloquent voice to care givers; I know no other book that tells their story with such respect. This brilliant study offers personal validation, a model study of suffering and moral decision making, and a profound challenge to policy makers."--Arthur W. Frank, Professor, Department of Sociology, University of Calgary and author of At the Will of the Body: Reflections on Illness and The Wounded Storyteller: Body, Illness, and Ethics

Autorentext

David A. Karp is Professor of Sociology at Boston College. His book Speaking of Sadness: Depression, Disconnection, and the Meanings of Illness (OUP, 1996) won the Charles Horton Cooley Award from the Society for the Study of Symbolic Interaction. He lives in Chestnut Hill, Massachusetts.

Klappentext

In this vivid and thoughtful study, David Karp chronicles the experiences of the family members of the mentally ill, and how they draw "boundaries of sympathy" to avoid being engulfed by the day-to-day suffering of a loved one.
Working from sixty extensive interviews, the author reveals striking similarities in the experiences of caregivers: the feelings of shame, fear, guilt and powerlessness in the face of a socially stigmatized illness; the frustration of navigating the complex network of bureaucracies that govern
the mental health system; and most of all, the difficulty negotiating an "appropriate" level of involvement with the mentally ill loved one while maintaining enough distance for personal health. Throughout, Karp sensitively explores the overarching question of how people strike equilibrium between
reason and emotion, between head and heart, when caring for a catastrophically ill person. The book concludes with a critical look at what it means to be a moral and caring person at the turn of the century in America, when powerful cultural messages spell out two contradictory imperatives: pursue
personal fulfillment at any cost and care for the family at any cost.
An insightful, deeply caring look at mental illness and at the larger picture of contemporary values, The Burden of Sympathy is required reading for caregivers of all kinds, and for anyone seeking broader understanding of human responsibility in the postmodern world.

Zusammenfassung
In this study, David Karp chronicles the experiences of the family members of the mentally ill, and how they draw "boundaries of sympathy" to avoid being engulfed by the day-to-day suffering of a loved one.

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