The Challenge of Fetal Alcohol Syndrome

In the first book of its kind, experts describe how to help people with Fetal Alcohol Syndrome. A summary of recent findings and recommendations is presented by the team who conducted the largest study ever done on people of all ages with Fetal Alcohol Syndrome and Fetal Alcohol Effects. Twenty-one experts from the fields of human services, education, and criminal justice respond by describing their solutions to this problem of a birth defect that targets the brain and has lifelong consequences.

Some of the most crippling secondary disabilities that people with FAS/FAE face include mental health problems, disrupted school experience, inappropriate sexual behavior, trouble with the law, alcohol and drug problems, difficulty caring for their children, and homelessness.

This book acknowledges the diverse and multifaceted needs of people with FAS/FAE across the lifespan. It will be valuable for parents and the many professionals working with people with FAS/FAE.

Autorentext

Edited by Ann Streissguth and Jonathan Kanter. Foreword by Mike Lowry. Introduction by Michael Dorris

Inhalt

Foreword / Governor Mike LowryPreface / Ann StreissguthAcknowledgments

Introduction / Michael Dorris1. Neurobehavioral and Neuroanatomical Effects of Heavy Prenatal Exposure to Alcohol / Sarah N. Mattson and Edward P. Riley2. Children of Alcoholic Mothers: Results from Goteborg, Sweden / Marita Aronson 3. Primary and Secondary Disabilities in Fetal Alcohol Syndrome / Ann Streissguth, Helen Barr, Julia Kogan and Fred Bookstein 4. Development of the FAS Diagnostic and Prevention Network in Washington State / Sterling Clarren and Susan Astley 5. Assessment and Treatment of an Adult with FAS / Jill Snyder, Jo Nanson, Richard Snyder, and Gerald Block6. A Study of Stimulant Medication in Children with FAS / Patricia Tanner-Halverson7. A Demonstration Classroom for Young Children with FAS / Patricia Tanner-Halverson 8. A National Survey of State Directors of Special Education Concerning Students with FAS / Thomas Wentz9. Case Managers and Independent Living Instructors: Practical Hints and Suggestions for Adults with FAS / Claire Anita Schmucker 10. An Advocacy Program for Mothers with FAS/FAE / Therese Grant, Cara Ernst, Ann Streissguth and Jennifer Porter11. FAS and the Social Security Disability Process: Navigating the System / Peter H.D. McKee 12. Representing the FAS Client in a Criminal Case / Jeanice Dagher-Margosian 13. A Judicial Perspective on FAS: Memories of the Making of Nanook of the North / C. Cunliffe Barnett14. Legal Issues and FAS / Robin LaDue and Tom Dunne 15. FAS: Preventing and Treating Sexual Deviancy / Natalie Novick 16. Parent Advocacy in FAS Public Policy Change / Jocie DeVries with Ann Waller 17. Spider Web Walking: Hope for Children with FAS Through Understanding / Jan Lutke 18. Residential Programs for Persons with FAS: Programming and Economics / Joseph Hess and George Niemann 19. Public Health Implications of FAS / Richard J. Jackson 20. Rapporteurs Report: A Summary of the Conference / Fred Bookstein References Authors Affiliations Author Index Subject Index