Management of Prader-Willi Syndrome

The newly revised and thoroughly updated MANAGEMENT OF PRADER-WILLI SYNDROME provides the full range of information needed to both understand and manage this complex disorder. The book starts with the history and medical and genetic information to orient the reader. The majority of the text, however, deals with the bread and butter clinical concerns of physicians and nurses who treat these patients, while providing pragmatic guidelines to families, educators, and community and social workers. Undertaken with the cooperation of the Prader-Willi Syndrom Association of America, MANAGEMENT OF PRADER WILLIE SYNDROME is the most complete resource available on the topic.

Newly revised and thoroughly updated

Provides the full range of information needed to both understand and manage this complex disorder

Undertaken with the cooperation of the Prader-Willi Syndrome Association of America, this is the most complete resource available on the topic

Texte du rabat

Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.

Contenu
Diagnosis and Genetics.- Clinical Findings and Natural History of Prader-Willi Syndrome.- Diagnostic Criteria for Prader-Willi Syndrome.- Molecular Genetic Findings in Prader-Willi Syndrome.- Laboratory Testing for Prader-Willi Syndrome.- Medical Physiology and Treatment.- Medical Considerations in Prader-Willi Syndrome.- Gastrointestinal System, Obesity, and Body Composition.- Growth Hormone and Prader-Willi Syndrome.- Multidisciplinary Management.- Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome.- Speech and Language Disorders Associated with Prader-Willi Syndrome.- Motor and Developmental Interventions.- Educational Considerations for Children with Prader-Willi Syndrome.- Tools for Psychological and Behavioral Management.- Educational and Social Issues for Adolescents with Prader-Willi Syndrome.- Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome.- Vocational Training for People with Prader-Willi Syndrome.- Residential Care for Adults with Prader-Willi Syndrome.- Inpatient Crisis Intervention for Persons with Prader-Willi Syndrome.- Social Work Interventions: Advocacy and Support for Families.- A National Approach to Crisis Intervention and Advocacy.- Advocacy Issues: School Discipline and Expulsion.- Advocacy Issues: Sexuality.