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Genetic Testing

  • Livre Relié
  • 224 Nombre de pages
"Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. W... Lire la suite
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Description

"Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail"--Provided by publisher.

Auteur

Michael Arribas-Ayllon is Lecturer in Biological and Cognitive Psychology at Cardiff University. His research interests include histories and futures of biological knowledge, the social shaping of genetic testing, the politics of personalised medicine and the discourse ethics of genetic counselling and risk communication.

Srikant Sarangi is Professor of Language and Communication and Director of the Health Communication Research Centre at Cardiff University. His research interests are in discourse analysis and applied linguistics, language and identity in public life, and institutional/professional discourse studies. He is author/editor of 12 books, guest-editor of five journal special issues and has published over 200 journal articles and book chapters.

Angus Clarke is Professor in Clinical Genetics in Cardiff University. He has interests in Rett syndrome and ectodermal dysplasia, as well as genetic screening, the genetic counselling process and the social and ethical issues raised by advances in human genetics. He also teaches and works as a clinician. He represents the Chief Medical Officer for Wales on the Human Genetics Commission. He has co-authored and edited six books, including Genetics, Society and Clinical Practice (jointly with Professor Peter Harper).



Texte du rabat

Firmly grounded in empirical data, this book critically engages with the relational, moral and ethical issues surrounding genetic testing in contemporary society. Competing accounts of autonomy, responsibility and blame a " by families, by professionals and in the public sphere a " are analyzed rigorously within a discourse-rhetorical framework, paying particular attention to the situated management of risks of knowing and risks of disclosure.



Contenu

1. Introduction  2. Genetic Testing: Technology in Context  3. Neo-liberalism and the New Genetics  4. Rhetorical Discourse Analysis  5. Personal Genomics and the Media  6. Family Accounts of Genetic Responsibility  7. Accounts of Genetic Testing in the Clinic  8. Professional Accounts of Ethical Challenges in Prenatal Clinic  9. Conclusion

Détails sur le produit

Titre: Genetic Testing
Auteur:
Code EAN: 9780415474436
ISBN: 978-0-415-47443-6
Format: Livre Relié
Editeur: Taylor and Francis
Genre: Biologie
nombre de pages: 224
Poids: 476g
Taille: H234mm x B160mm x T18mm
Année: 2011
Auflage: New.