Care management after brain injury

The number of people with brain injury who need long-term care increases each year as more people survive. Family members provide a large proportion of this care, but paid staff may also be employed. In this book, Dr McCluskey explores how decisions about care are made when a person receives compensation following their injury, and factors that influence care management. A sample of 51 adults were interviewed, including 14 people with brain injury, family members, paid attendant carers and others who coordinated care. All of the people with brain injury received 24-hour support at the time of hospital discharge. Mutual risk tolerance and the presence of a case manager were associated with stable care, and enabled a person with brain injury to spend time alone, take low-level risks and experience autonomy. Strategies are suggested that allow professionals and family carers to gradually increase risk, and share responsibility for risk management. The findings have implications for health professional and legal practice, education, research and policy.

Auteur

Dr Annie McCluskey is an occupational therapist, a health sciences researcher and postdoctoral fellow at the University of Sydney. Research to date has investigated the experiences of people with a disability, and methods to translate evidence into practice. The current research was completed as part of a PhD at the University of Western Sydney.