Segregation Hurts

Segregation Hurts is a book that explores the stories of six families who have children with disabilities. The families who reside in the south west of India shared their daily experiences living with a child with a disability. Irrespective of the diverse socio-economic statuses and religious beliefs, families shared common challenges raising a child with a disability in the Indian society. These children faced exclusion and denial of admission to local public schools due to their disability and they were forced to seek admission to a special school in their neighbouring community. Public schools in India continue to deny admission to millions of children due to their disabilities and are an invisible minority in the society. This book provides a novel and unique perspective about the nuances and daily struggles of families who are silenced and shut out due to the shortcomings and oppressive nature of the education system. Further an indepth analysis and critique is made of the treatment and education of children with disabilities in India. Dr. Antony is a strong advocate of inclusive schooling and this book will share his expertise within international contexts. "I highly recommend Dr. Antony's book. It gives a new insight into the life and lessons of Gandhi." - Arun Gandhi, President, Gandhi Worldwide Education Institute, Rochester, NY, USA. Pavan Antony has written a compelling overview of the education of children with disabilities in India through six stories. There are commonalities in the families's experiences, even though they come from different backgrounds. The candid conversations the researcher had with the families brings their hopes, fears and dreams to life. The move to inclusive practices in a developing country is difficult and Pavan Antony captures the macro and micro challenges through this powerful narrative. - Dr. Vianne Timmons, President and Vice-Chancellor, University of Regina, Canada. Pavan Antony has given us deeper insight into the lives of families that include people with disabilities in India. Through the stories of six individuals, their parents and siblings, the variables of class, religious tradition, cultural identify and human resilience are explored. Pavan's book provides an enriching cultural lens with which to explore disability, humanity and the dignity of each person. - Barbara Trader, Executive Director of TASH, Washington,

Inhalt

Acknowledgements; Segregated Lives of Children with Disabilities in India: Daily Life; Experiences of Indian Families; List of Tables; Chapter 1. Introduction; Education and the Kerala State; Status of People in the Society; Chapter 2. Education for All and its Importance Around the Globe; Special Education in the US and the Journey towards Inclusion; Special Education: Culture, Family Values and Belief Systems. Internationally; Culture; Different Cultures; Family Values; Belief Systems; Education in India; Special Education; Inclusion; Current Status of the Law in India; Educating Professionals and Parents; Exploring the State Kerala; Chapter 3. Thomas and Nancy: Parents of a Childwith Cerebral Palsy; Life in the Upper Classwith Educated Parents; Titi s/o Thomas and Nancy; Initial Days After the Birth of Titi; Chapter 4. Usman and Khadeeja: Parents of a Child with Cerebral Palsy; Life in the Upper Classwith Less Educated Parents; Chapter 5. Krishna and Neha: Parents of a Child with Down Syndrome; Life in the Middle Class with Educated Parents ; Chapter 6. Amar and Amina: Parents of a Child with Intellectual Disability; Life in the Middle Class with Less Educated Parents; Chapter 7. Joseph and Jane: Parents of Twins with Intellectual Disability; Life in the Lower Class with Less Educated Parents; Chapter 8. Javed and Jasmine: Parents of a Child with Intellectual Disability; Life in the Lower Class with Uneducated Parents; Chapter 9. Research Methodology; Introduction; Case Study; Participants; Procedures; Data Collection; Data Analysis; Theoretical Framework to Interpret the Stories; Chapter 10. Compiling Stories: What Did We Learn?; The Social, Cultural and Educational Attitudes Towards Disability; Social; Advice from Medical Doctors; Legal Knowledge and Governmental Support; General Public's View on Disability ; Current Status and Future Plans for a Child with Disability in Kerala; Cultural; Interdependent Family Values ; Belief System; Educational; Chapter 11.A Self Refl ection: ecommendations for Future; Limitations; Summary of Limitations and Recommendations; Implications; Medical Professionals; Legal Knowledge; Belief System 84Summary of Implications for Future Practice; Early Childhood; Elementary, Middle and High School Years; Future; Implications for Future Research; Conclusion; Merging the Societal, Cultural and Educational Attitudes for Change; Operational Definitions; Socio-Economic; Upper Class Educated: Thomas and Nancy; Upper Class Less Educated: Usman and Khadeeja; Middle Class Educated: Krishna and Neha; Middle Class Less Educated: Amar and Amina; Lower Class Educated: Joseph and Jane; Lower Class Uneducated: Jasmine and Jane; References; Appendix A. Research Study Consent Form; Appendix B. Interview Questions.