Care of Adults with Chronic Childhood Conditions

This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood-primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support.

This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population.

Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.

Autorentext

Mariecel Pilapil, MD, MPH, Assistant Professor, Medicine and Pediatrics, Hofstra Northwell School of Medicine, Hempstead, NY, USA

David DeLaet, MD, MPH, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Icahn School of Medicine at Mount Sinai, New York, NY, USA

Alice A. Kuo, MD, PhD, Professor and Chief, UCLA Medicine-Pediatrics, Director, UCLA Medicine-Pediatrics Comprehensive Care Center, Health Care Transitions Research Network (HCT-RN), UCLA Center for Healthier Children, Families, and Communities, Santa Monica, CA, USA

Cynthia Peacock, MD, Associate Professor of Medicine and Pediatrics, Departments of Medicine and Pediatrics, Baylor College of Medicine, Houston, TX, USA

Niraj Sharma, MD, MPH, Assistant Professor, Medicine and Pediatrics, Harvard Medical School, Brigham and Women's Hospital, BostonChildren's Hospital, Boston, MA, USA

Inhalt

Part I: Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Facilitating the Transition from Pediatric-Oriented to Adult-Oriented Primary Care.- Part II: Care of the Emerging Adult.- Care of the Emerging Adult.- Part III: Case-Based Examples of Management of the Young Adult with a Chronic Childhood Condition.- Attention-Deficit/Hyperactivity Disorder (ADHD).- Autism.- Cerebral Palsy.- Childhood and Adolescent Cancer Survivors.- Congenital Heart Disease.- Cystic Fibrosis.- Diabetes Mellitus (Type 1).- Down Syndrome.- Human Immunodeficiency Virus (HIV).- Inflammatory Bowel Disease.- Intellectual Disability.- Juvenile Idiopathic Arthritis.- Muscular Dystrophy.- Sickle Cell Disease.- Solid Organ Transplantation.- Spina Bifida.- Part IV: Other Clinical Considerations in the Care of Adults with Chronic Childhood Conditions.- Respiratory Care of Adults with Chronic Pulmonary Disease.- Nutritional Support.- Technology Dependence of the Nervous System.- Mobility Impairment.- Sexual and Reproductive Health.- Palliative Care.- Part V: Socio-Legal Aspects of Transition Care.- Assessing and Enhancing Psychosocial Functioning.- Adherence and Self-Management.- Education.- Employment.- Independent Living.- Decision-Making and Guardianship.- Access to Health Insurance.